Preliminary Program

Thursday, 8 June 2023

 

14:00 – 15:00                   Registration and coffee

 

15:00 – 15:15                    Opening of the congress

                                               Ann Raes, Pediatric Nephrologist and President Belgian Pediatric Nephrology group, UZ Gent

                                               Lore Willem, Pediatric Psychologist, UZ Leuven

 

15:15 – 17:00                     Nutritional task force

                                                Chairs: Brigitte Adams, Pediatric Nephrologist, Huderf and Imelda Hamels, Specialized nurse, UZ Leuven

 

                                                   Young Transplantoux: Physical activity in children and adolescents with organ transplantation

                                                 Nico Vandenrijn, Patient representative and Diethard Monbaliu, Transplant Surgeon, UZ Leuven

 

                                               Presentation A

                                               Katrien Van der Vaerent, Dietician, UZ Leuven

                                                  Presentation B

                                                Ann Desloovere, Dietician, UZ Gent

                                                   Presentation C

                                                Speech therapist, Huderf

                                                   Selection of 1 or 2 abstracts/cases/workshops

                                

18:30-19:30                        Welcome reception at the City Hall of Leuven                                                    

 

 

 

 

Friday, 9 June 2023

 

9:00 – 10:00                       Family planning in genetic kidney diseases

                                                   Chairs: Nathalie Godefroid, Pediatric Nephrologist, UCL and Dirk Bethe, Pediatric Psychologist, Heidelberg

 

                                                      Ethical aspects of genetic testing, preconceptional screening and neonatal screening 

                                                   Pascal Borry, Bioethicist, UZ Leuven

                                                      Counselling families with rare kidney genetic diseases: a multidisciplinary approach

                                                   Detlef Bockenhauer, Pediatric Nephrologist, UK

 

10:00 – 11:00                     Presentations based on submitted abstracts

 

11:00 – 11:30                       Coffee break

 

11:30 – 13:00                       Taking care of parents of children with CKD

                                                    Chairs: Quentin Bertrand, Pediatric Nephrologist, CHC Liège 
                                                                   and Sarah Reynaert, Pediatric Psychologist, UZ Antwerp

 

                                                    Living loss in parents of children with CKD

                                                    Elke De Bruyne, Pediatric Psychologist, UZ Gent
 

                                                       Results of a Belgian Multicentric Study on Illness-related Parental Stress 
                                                       and Quality of Life in Children with Severe Kidney Diseases 

                                                    Lore Willem, Pediatric Psychologist, UZ Leuven
 

                                                    Selection of 2 or 3 abstracts/cases

 

13:00 – 14:00                      Networking lunch 

 

14:00 – 15:30                       Lifestyle and chronic illness

                                                    Chairs: Ann Raes, Pediatric Nephrologist, UZ Gent and Annelies Verhaeghen, Social Worker, UZ Leuven

                                               

                                                       Social Media and chronic Illness

                                                     Laura Vandenbosch, Professor, KU Leuven

                                                     Role of Social media in CKD

                                                     Shahid Muhammad, Specialist Biomedical Scientist, UK

                                                      Disease-specific patient information brochures

                                                      Joanna Sladowska-Kozlowska, Pediatric Nephrologist,  Heidelberg  

  
                                                    Quality of life of patients with PUV

                                                     Valeska Bidault, Pediatric Urologist, CHU Lyon

                                                       
                                                       Selection of 1 or 2 abstracts/cases

 

15:30 – 15:50                        Coffee Break

 

15:50 – 17:30                        Presentations based on submitted abstracts

 

 

17:30 – 19:00                     Time free in Leuven 

 

19:00-….                              Conference Gala Dinner

                                                  Prices for best abstracts: 

                                                  Lore Willem, UZ Leuven and Djalila Mekahli, UZ Leuven                            

 

 

 

 

 

Saturday 10 June 2023

 

 

9:00 – 10:30                       Transition

                                                   Chairs: Ari Van Hulle, Specialized Nurse, UZ Leuven and Stéphanie Leroi, Pediatric Psychologist, CHC Liège

 

                                                     Testimony of an adult patient and his/her parents about transition traject

                                                  To be discussed
 

                                                      Transition view of Adult Nephrologist

                                                    Katrien De Vusser, Adult Nephrologist, UZ Leuven
 

                                                      Transition view of Pediatric Nephrologist

                                                   Laure Collard, Pediatric Nephrologist, CHC Liège
 

                                                     Barriers to the Successful Health Care Transition of Patients with Kidney Disease

                                                   Jenny Prüfe, Pediatric Psychologist, Universitätskinderklinik Essen

 

10:30 – 10:45                     Coffee Break

 

10:45 – 11:00                     EWOPA Business Meeting

 

11:00 – 12:30                     Presentations based on submitted abstracts

 

 

12:30 –                                Conference closure 

                                                Lunch boxes 

______________________________________________________________________________