Thursday, 8 June 2023
14:00 – 15:00 Registration and coffee
15:00 – 15:15 Opening of the congress
Ann Raes, Pediatric Nephrologist and President Belgian Pediatric Nephrology group, UZ Gent
Lore Willem, Pediatric Psychologist, UZ Leuven
15:15 – 17:00 Nutritional task force
Chairs: Brigitte Adams, Pediatric Nephrologist, Huderf and Imelda Hamels, Specialized nurse, UZ Leuven
Young Transplantoux: Physical activity in children and adolescents with organ transplantation
Nico Vandenrijn, Patient representative and Diethard Monbaliu, Transplant Surgeon, UZ Leuven
Presentation A
Katrien Van der Vaerent, Dietician, UZ Leuven
Presentation B
Ann Desloovere, Dietician, UZ Gent
Presentation C
Speech therapist, Huderf
Selection of 1 or 2 abstracts/cases/workshops
18:30-19:30 Welcome reception at the City Hall of Leuven
Friday, 9 June 2023
9:00 – 10:00 Family planning in genetic kidney diseases
Chairs: Nathalie Godefroid, Pediatric Nephrologist, UCL and Dirk Bethe, Pediatric Psychologist, Heidelberg
Ethical aspects of genetic testing, preconceptional screening and neonatal screening
Pascal Borry, Bioethicist, UZ Leuven
Counselling families with rare kidney genetic diseases: a multidisciplinary approach
Detlef Bockenhauer, Pediatric Nephrologist, UK
10:00 – 11:00 Presentations based on submitted abstracts
11:00 – 11:30 Coffee break
11:30 – 13:00 Taking care of parents of children with CKD
Chairs: Quentin Bertrand, Pediatric Nephrologist, CHC Liège
and Sarah Reynaert, Pediatric Psychologist, UZ Antwerp
Living loss in parents of children with CKD
Elke De Bruyne, Pediatric Psychologist, UZ Gent
Results of a Belgian Multicentric Study on Illness-related Parental Stress
and Quality of Life in Children with Severe Kidney Diseases
Lore Willem, Pediatric Psychologist, UZ Leuven
Selection of 2 or 3 abstracts/cases
13:00 – 14:00 Networking lunch
14:00 – 15:30 Lifestyle and chronic illness
Chairs: Ann Raes, Pediatric Nephrologist, UZ Gent and Annelies Verhaeghen, Social Worker, UZ Leuven
Social Media and chronic Illness
Laura Vandenbosch, Professor, KU Leuven
Role of Social media in CKD
Shahid Muhammad, Specialist Biomedical Scientist, UK
Disease-specific patient information brochures
Joanna Sladowska-Kozlowska, Pediatric Nephrologist, Heidelberg
Quality of life of patients with PUV
Valeska Bidault, Pediatric Urologist, CHU Lyon
Selection of 1 or 2 abstracts/cases
15:30 – 15:50 Coffee Break
15:50 – 17:30 Presentations based on submitted abstracts
17:30 – 19:00 Time free in Leuven
19:00-…. Conference Gala Dinner
Prices for best abstracts:
Lore Willem, UZ Leuven and Djalila Mekahli, UZ Leuven
Saturday 10 June 2023
9:00 – 10:30 Transition
Chairs: Ari Van Hulle, Specialized Nurse, UZ Leuven and Stéphanie Leroi, Pediatric Psychologist, CHC Liège
Testimony of an adult patient and his/her parents about transition traject
To be discussed
Transition view of Adult Nephrologist
Katrien De Vusser, Adult Nephrologist, UZ Leuven
Transition view of Pediatric Nephrologist
Laure Collard, Pediatric Nephrologist, CHC Liège
Barriers to the Successful Health Care Transition of Patients with Kidney Disease
Jenny Prüfe, Pediatric Psychologist, Universitätskinderklinik Essen
10:30 – 10:45 Coffee Break
10:45 – 11:00 EWOPA Business Meeting
11:00 – 12:30 Presentations based on submitted abstracts
12:30 – Conference closure
Lunch boxes
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